TOF Stories

Jimmy and his wife Molly welcomed their second child together, William “Billy” Kimmel. At three days old, Billy had successful open heart surgery at Children...

I remember it like yesterday. Pregnant with my first child, I went to my 9-week scheduled ultrasound not really knowing what to expect. I heard a little baby’s heartbeat in my belly! I was blown away.

Devin Ryan was born with "Tetralogy of Fallot," which is a rare condition caused by a combination of four heart defects that are present at birth (congenital...

Katie suffered from Tetralogy of Fallot. Read more about the success of her procedure and experience at Children's Hospital of Pittsburgh of UPMC.

Diagnosed with tetralogy of Fallot at a New Mexico hospital, Matthew was transferred to CHOP's Cardiac Center for surgical treatment and long-term follow-up care.

When Alissa was a baby, she underwent heart surgery at Children’s Hospital of Philadelphia to treat tetralogy of Fallot (TOF), a congenital heart defect.

Robby Motta was born with Tetralogy of Fallot—four defects within his heart. Eight years later, Robby is an active second-grader.

Nothing had gone as Jordan and Katie Guidry planned following the birth of their son, Waylon. Before Waylon could receive the heart surgery he so badly needed, his parents learned their surgeon was leaving the area. The Guidrys were suddenly faced with uprooting from their home in Fate, Texas (Rockwall County) and taking their very sick 6-mon...

Swimming lessons? Check. Banging on the piano? Check. Playing in the snow? Check. Toddler Alex Bracebridge is now living a normal life, thanks to a heart surgery at Lucile Packard Children’s Hospital Stanford.

To 22-year-old Erin, her numerous scars are powerful reminders of all she's overcome since being diagnosed with congenital heart disease as a baby.

After becoming the first patient in the Philadelphia region to receive an innovative replacement heart valve, Mac is enjoying life.

Brittany Rotonda shares her experience living with tetralogy of Fallot and how she found comfort and hope at the Philadelphia Adult Congenital Heart Center, a joint program of CHOP and Penn.

Meagan and Dante Cipulli quickly settled on a name when they discovered their third baby would be a boy: Marco, which means God of War.

Tetralogy of Fallot is a birth defect that affects normal blood flow through the heart. It is made up of four defects of the heart and its blood vessels. To learn what it’s like to live with this condition or how families are affected, read these real stories from people living with Tetralogy of Fallot.

With that, Benson continued to rest up, the chest tubes were removed one by one, and Aaron and I continued to take turns staying with him. I continued to pump and to freeze. They didn’t need nearly as much milk as I was pumping since they were spinning and supplementing. They wer

What was supposed to be a routine visit with their pediatrician on a seemingly typical Friday morning changed Stephanie Harding and her son Trent’s life forever when their day ended with a diagnosis of Tetralogy of Fallot.